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Joint | June 8, 2016 | Press Room | Press Conference Adcock

Full MP3 Audio File

[BLANK_AUDIO] [BLANK_AUDIO] [SOUND] [LAUGH] [BLANK_AUDIO] [BLANK_AUDIO] [CROSSTALK] [BLANK_AUDIO] [BLANK_AUDIO] [COUGH] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] Now, this is um Sham who I was talking about. >> How are you? >> Okay, nice to meet you. I'm Lenoli [CROSSTALK] [CROSSTALK] [BLANK_AUDIO] [BLANK_AUDIO] [CROSSTALK] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO]

[BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] I wanna be respectful to the press' time because I know you guys are just as busy as everyone else. I wanna thank everybody for being here today and we might have some stragglers who might come in a little bit. Imagine knowing exactly what you want to say without being able to for the words and you just can't get them out Imagine seeing letters on a page that you can't put together as recognizable words and sentences. Imagine being unable to communicate your emotions with a simple I love you or what's happening? Whether you make your living or your livelihood with your ability to speak like sportscaster Woody Durham who just Just last week announced his diagnosis, a primary progressive Aphasia, or as each member of the press here today depends on speech and the ability to understand the written word. We can all relate to the devastation we would feel if robbed of our ability to communicate verbally with others. It's ironic that That we're here today able to raise our voices and to speak up and speak out for those who have been robbed of their ability to speak, by Aphasia, a condition that does not discriminate but affects individuals of every age, gender, race and socioeconomic status. So why are we here today? June the 8th The eight? June is recognized as National Aphasia month across the country. Governor McCrory has declared June as Aphasia Awareness Month in North Carolina and I have a proclamation actually to give at the end of today. And today is Triangle Aphasia Project's Legislative Advocacy Day. TAP Triangle Aphasia Project Project is a non profit, founded in 2003, to support individuals with Aphasia, by helping them get back into the community and work and play and improving their communication confidence. For their families, TAP offers training programs and supportive resources. But the best people to tell you Tell you about the good work that the Triangle Aphasia Project or Maura Silverman the TAP executive director or some folks that she has brought with her today, after Maura and some others speak we'll have a few minutes for questions and I'll be happy to give you the Governor's proclamation. Maura. >> Thank you very much Thank you for being able to recognize such an important month, we are really indebted to the opportunity to share about Aphasia. Aphasia is a word that most people don't know until it happens to you or to somebody that you love. And when it does, you realize that not one person has aphasia, but

the entire family has aphasia, your entire community has aphasia. Because it is a disorder of communication, it's not of intellect, it's not of memory but the ability to exchange ideas, to access information in written mode, in auditory mode and in speech. And as you said so well with the media, here you know how important those words are to communicate strong messages, and simple messages and as a speech pathologist I had the opportunity to work along my full career working with people who have had strokes and brain injuries able to connect them with the words again, but something was missing. One thing was missing was I was working one on one with individuals with aphasia, but I just told you if you have aphasia your whole family has aphasia. We we're missing a whole community, not just the family but the friends, many of my clients say they miss their friends. They become socially isolated, as a matter of fact the National Aphasia Association says 92% of individuals with aphasia become socially isolated. I decided that wasn't right, so in 2003 I started the Triangle Aphasia Project with the goal to have a community where individuals with aphasia could continue to get services, program, support for as long as they wanted to. And it started with two groups. It started with the board members meeting in my living room with five people and then now we serve over 250 people in the triangle and we actually just started Our first satellite group in Winston, Salem. So we'll have, by the end of June 20, Aphasia groups that meet across the triangle working on reading, writing, listening and speaking. We have the ability to connect them with passions that they had before, we have a tough garden Group, we have three different Tap book clubs, we have Mm-hm Aphasia Day which is a full day we work with people of traumatic brain injury and people getting back to work, as I found out we got an announcement this morning then. One of our Tap clients was able to go back to work. It doesn't take a couple of weeks And unfortunately sometimes that's all that insurance allows. If you go home and you look at what your insurance policy says you might be surprised. People are getting less and less structured therapy and what's left. We need to find new ways. There are people that get eight therapy sessions It's not enough, some people at a max can get three to five months of therapy, not enough, and then you start banking in your own resources and as couple of hundred dollars for a one on one speech therapy session with a speech pathologist even though we are good and it's worth it we need to find other Other ways. And so TAP has those other ways. We work based on life participation approaches to aphasia, we maximize neuro plasticity by teaching individuals and families to take ownership of their programming and get better, get back to doing the things they're passionate about. And I'm And I'm so proud to say that we have so many success stories more than we had in 2003, sitting in my living room [LAUGH] so I greatly appreciate the opportunity to tell you a couple of things about TAP. One is that, we serve those three communities, individuals with aphasia, through groups and programming. Families, friends, We even have a children's program that has the DVD and a puppet show for kids, parents or grand parents who have aphasia. You may have come in here thinking that those people are gonna be in their 80's. This is a representation our average age is 45, we have people of as young as 18 In our program and is always 90 so it does not discriminate, that was a very appropriate statement. The third group is health care providers, the community businesses, if we could teach them ways to help welcome people with aphasia, make them less uncomfortable in communicating with somebody Somebody with aphasia, that nurses, that doctors, that business owners would know oh, they know that they wanna say, they're just having some trouble getting it out. We're Aphasia certified and that's one our goals as we move forward as well. I'm very proud today to be able to say that Tap/g continues to grow grow that we have some many opportunities and we don't make a difference on life at a time, we do it at multiple life at a time. An I'd like to ask one of our board members who was also TAP client just a little bit ago to share his story and tell you how TAP helped him Sean

>> Hello thank you for very much for recognizing TAP and also aphasia. So three years ago, I was a sales marketing executive with a company and travelling throughout the world and travelling through North American and an accident happened. And I was suffered with a stroke, I didn't know that was happening, I was just having a stroke and then all of a sudden my speech went away. And I didn't know my speech went away because I talked to my friends, I talked to my family and I was in the hospital about a week after I had the stroke and I was talking to my wife and she said to me, do you understand what you're saying? I said I understand what i'm saying, i'm saying it to you right now. And she said no, do you understand what you are saying and I said, what do you mean? And she recorded me speaking and I was not speaking like I am now. I spoke, she asked me a question, where am I [SOUND] And that's what I said, that's not what I meant to say, that's what I said. And she said, do you have daughters? I do and I spoke like that, I couldn't get my words out and was so frustrating at the time. So I had to get back my speech, I wanna go back to work, I wanna do this. I was 46 years old when I had the stroke. It was an ansong/g stroke. I didn't have any complications before and afterwards all of a sudden my speech was gone. And that was the biggest thing because my arm my leg I can get those back easy, my speech. I had two daughters in university, friends, I couldn't talk to them properly so Then I went through insurance, I went through 2 months of insurance with the in patient and that was great. The speech therapy worked well and then I had 30 sessions afterwards with out patient. So 30 sessions after having a massive stroke was about half a year and then nothing after that. I would be at home, my wife went back to work, my daughters were at university and I had nothing. I wouldn't be able to communicate with anyone except for my dog and >> [LAUGH] >> That's not good- >> [LAUGH] But and so I joined TAP, first of all as a client and I went to the book group. I went to TAP sessions, I had people around me that had aphasia and some of them were better than I was, some of them were worse than I was. And I said, I gotta get like those people that are better than me. I had to get better, get better, and TAP groups helped me a great deal, helped me till today, three years later. I still go to TAP groups and I'm now a board member with TAP. And they help me a lot, so I wanna thank you guys for recognizing TAP. And also Aphasia in general. Cuz it amazing cuz three years ago when I first had a stroke, and someone said Aphasia and I said what is Aphasia. I knew a stroke very much, but I didn't know what Aphasia was. And then realizing all that people that have strokes, some of them have Aphasia, some of them don't. But those who've had Aphasia it impacts their lives. And it's not only older people it's younger people too, and it really impacts your life, so I wanna thank you guys for recognizing TAP and also with Aphasia . Thank you. >> [BLANK_AUDIO] One of the things I neglected to say is that It was very meaningful for me when I met Ron and we talked about doing this, is that in addition to having the great honor of serving in House Representatives. I've also been a nurse for 41 years and I've taken care of my share of patients who have had Aphasia. Either through a stroke or from a brain injury or whatever. So this is hugely meaningful to me. To be able to give you folks a platform on which to speak. And at this time I would like to present you with this proclamation from the governor and rather than read the whole thing, cuz really, it's a great repetition of all the wonderful things that you've said today. I just want to say we're very grateful for folks like you, who not only recognize problems in the community but decide to do something very substitute about it and make such a difference in people's lives. >> Thank you. >> Congratulations. >> Thank you very much. >> Thank you. I believe that we're ready for some questions, if you have any Laura? >> [LAUGH] >> And I didn't have to Your first name but I know Laura all the time. >> [LAUGH] >> How does one most commonly get a seizure/g, you mentioned stroke and TBI. Are those the primary causes? >> Yes, the primary cause would probably be stroke. Majority of our clients have stroke and 30 to 40% of every stroke will result in a communication disorder like a like aphasia. Aphasia primarily occurs on left hemisphere for most left language dominant people, so damage to that side,

you can also receive from traumatic brain injury, gun shot wound, I mean representative Gabby Giford is a great example of one of your colleagues who suffer aphasia because of that, you can have other [INAUDIBLE] like a accident things like that, you can also have brain tumors, we work very closely with the Duke/g tumor center and when somebody has a brain tumor that impacts on the left side and finally there is a Component of aphasia called primary progressive aphasia it is on that starts with language loss first then, actually becomes, it's a frontal temporal dementia so that's what Durham mentioned had mentioned that is suffering from which is a Is a special group for us to work with. >> Yeah Anolly/g from North Carolina health new >> Yes Anolly/g >> [LAUGH] So can clear a little a bit about the average number of therapy session that patient with aphasia usually have and then how much of that insurance is currently covering? >> I can I can try, the average varies considerably, I mean I get calls all the time from people who just don't have insurance or young didn't think anything was gonna happen to them and rolling the dye and not having any insurance at all. I would say they are common at 30 is the average number of session out patient. A lot depends on on your motor involvement so if you have a stroke that has significant motor deficits you can often have impatient therapy for longer and your insurance covers that. There has been some reduction in medic care, combines a session with occupational therapy so speech and occupational share sessions. So often you have to make the choice, do you wanna brush your teeth yourself or do you wanna communicate. >> I think what your saying is really bare when there is no standards >> There is no standard and many people end up paying out of pocket for services and if there are services available and that really doesn't meet the long term needs of people with aphasia, many aphasia are chronic and they I like believe especially with the amount of information we're talking earlier about neural plasticity, we've learnt so much in the last 10, 15 years about neural plasticity that there is so much hope And with ownership, really stimulation of all kinds you can continue to get better for as long as you desire. It could be years, one of the things that TAP has started is called communication support team and It's and amazing program that allows individuals to become Center of this team of friends and family and some people they don't even know but their family do and connect them as almost tutors like a faith based care team would be set up and they come and provide programming for the person with Aphasia, are they therapist? No they volunteer but we all Communicate so that kind opportunity allows people to get stimulation and reading writing listening and speaking for the requisite number of hours they need to actually make the brain change. >> I understand that just to show you how things changed before the years when I was first nurse we believed that there was a discreet Window in which your speech could improve and I think that's where this all number of visits or length of time came in. And we what we realized now is that you can continue to improve over time there probably is no absolute end point and that each person is individual as well. >> Absolutely [CROSSTALK] what are some of the challenges That you might face in getting back to work for example using the gentleman behind that just gotten back to work. And when you go to work with an employer what do you tell what's the support that you provide? >> Corey/g do wanna say any about getting back to work and then I'll - >> come on to the microphone >> Yeah I guess that the only The only thing that I can say, first of all, I wanna say thanks to TAP because it was the impetus for me going back to work but [COUGH] The thing that is key is being able to communicate and so my job requires me being able Able to talk to people on a daily basis and so I was enterprise architect a number of years at IBM as well as my term Employer and so I can remember all of the stuff that

I once knew. >> Yes >> [LAUGH] >> Although it took me some time To actually study and prep myself for getting back to the job. >> I think that Tom's healing- >> Amen! [LAUGH] Thank you for that. >> Amen! >> [LAUGH] What really spoke to what Gail started with is imagine knowing everything you wanna say but being unable to access it, imagine your memory being okay. I mean when you see someone hesitant in their speech or questioning what you said, there's a part of you that says hmm. I wonder if I wonder if there intellect's there, I wonder if they are okay. What these people are saying, it's all up there, I just have challenges getting it out so the back to work group, for example, we work with, I think, the number one thing that people are robbed with aphasia is >> Confidence >> [LAUGH] >> is they hear the Feedback I mean that's why people that are very none fluent stop talking, because they hear what coming out and going I don't like how it sounds, but if we could provide that confidence that you know what everyone stalls, everyone says Mm-hm, everyone takes some time people will be patient and the more that people know about ephesia this are opportunities to spread awareness is What evens the playing field for this people with Aphasia cuz then they can go back to work and nobody's questioning their confidence, they are really realizing that your linguistic abilities does not represent your cognitive confidence, it's a great question and we have a back to our group where we work on the things that communication would affect, how many times have you on your You know you are on the phone you are texting you do all this things they are all communication so those are things we work on that group, great question. >> Are there any other questions, I'd like to thank, certainly I'd like to thank the press for coming thank you so much Eunice I wanna thank Ron for giving me the opportunity to sponsor this and I wanna thank all of you for coming here and really putting a face on this [INAUDIBLE] cuz I think if you are doing great through it, thanks very much. >> Thank you. >> Thank you >> And we are done. [BLANK_AUDIO] [BLANK_AUDIO] It's just a strategy software mostly The strategy. [CROSSTALK] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO]

[BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] Can I tell you all something, at two o'clock the house doesn't The gallery is on the third floor at some point hopefully towards the beginning speaker of the house and more will recognize triangle [INAUDIBLE] project and awareness they were having from his chair so when that happens we need to be ready Ready to stand up cuz he'll recognize us from the podium and I would say the gallery, depending on what's on the agenda today, the gallery can get kinda busy so I would say we go up there around quarter to two, and get seated, and I'll lead everyone up And I did call up for two so you guys have to go, don't worry about it we just need to know who's gonna be there, we'll be able to stay for 15 or 10 minutes, or so and as soon as they recognize us we just leave. >> You can leave. Cuz them they have their business to do, but if there isn't an ability or space enough for you to stand up find enough, I'll be here I'll stand up for you. Wave like this. >> [LAUGH] >> It's probably good to have your [UNKNOWN] evident. >> Yea. It's one now so we'll be right here and a quarter to two there's an elevator right across the table and you can go right up for a [INAUDIBLE] >> And I still have lots of doughnuts. >> [LAUGH] [LAUGH] And some water if anyone needs a snack, okay. >> [BLANK_AUDIO] [BLANK_AUDIO]

[BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] [BLANK_AUDIO] First year [INAUDIBLE] >> [LAUGH] >> Yea but um actually we have summer break, this is our last summer so I am working with [UNKNOWN] I love writing so [CROSSTALK] [BLANK_AUDIO] [BLANK_AUDIO]

[BLANK_AUDIO] [BLANK_AUDIO] So he would have been 62. >> 62 >> Alright well you have a good day >> Thank you [INAUDIBLE] [BLANK_AUDIO] I'm not sure. >> Okay. >> Picture >> Oh you want of the two of you? >> Yeah >> Okay. [BLANK_AUDIO] Ready, going to keep the hat on >> Of course >> Here we go one, two, three, thank you >> Thank you >> Bye >> Bye. >> Thank you all for coming [BLANK_AUDIO] [BLANK_AUDIO]